Information sharing for research purposes
The staff at this GP practice/GP hub record information about you and your health so that you can receive the right care and treatment. We need to record this information, together with the details of the care you receive, because it may be needed if we see you again.
We may use some of this information for other reasons, for example, to help us to protect the health of the general public, to plan for the future, to train staff and to carry out medical and other health research to drive healthcare forwards and improve patient outcomes.
If you are happy for your information to be used in this way you do not have to do anything. If you have any concerns or wish to prevent this from happening, please speak to your GP practice/GP hub.
Your care and your relationship with your doctor will not be affected in any way if you decided not to share your data for research purposes.
Current research programmes:
IQVIA
We are currently involved in a research and patient insights programme called the IQVIA Medical Research Extraction Scheme (MRES) for which we provide non-identified information from patients’ electronic medical records. The data collected is non-identified which means it DOES NOT include any direct patient identifiers such as names, addresses, NHS numbers, or full dates of birth, nor any direct identifiers of practices participating in this data extraction scheme. Individual patients’ records are added into a much larger non-identified database, containing records from millions of patients across the UK and may be linked to other data, such as hospital data.
If you would like to opt out of the IQVIA MRES data collection scheme, please let us know, and no data from your records will be collected for use in research. This will not affect your care in any way.
For more information click here
For more information on how your data is used visit:
https://www.iqvia.com/locations/uk-and-ireland/medical-research-data
CPRD
Clinical Practice Research Datalink (CPRD) is a government organisation that provides anonymised patient data for research to improve patient and public health. You cannot be identified from the information sent to CPRD. If you do not want anonymised information from your patient record to be used in research you can opt out by speaking to your doctor.
Patient information poster
For more information about how your data is used visit: www.cprd.com/public
Last updated on 08/10/2020